Monday, January 14, 2013

A Little Something Different

I was trying to come up with something profound, or at least, thoughtful, to describe coming back out to Ocotillo, CA after having been home with my family for almost a month.  The sadness of leaving my family, the excitement of coming back to work and an environment I have come to love (even if it is far too cold at the moment).  But then something major hit the news and I decided instead to follow my friend Kyle Eichenberger's example and bring up current events in my blog. Don't worry, it probably won't happen often.

What current topic could I possibly have to weigh in on, you ask?  Perhaps you will remember last week when the results of tests and an autopsy were released in regards to the brain of former football player Junior Seau, who committed suicide in May.  Scientists were shocked to discover that Seau had a condition they call CTE, chronic traumatic encephalopathy "likely brought on by two decades of blows to the head as a football player, the report said."  Roughly translated for the non-scienctists: swelling of the brain from multiple concussions.

Who would have thought that repeated blows to the head would be a problem?  Apparently not NFL players, many of whom are now who are suing the NFL for keeping the risks of playing football to themselves.  The study suggests soldiers, who often receive concussions from blasts, may also have this problem.  Since the NHL isn't mentioned I'm assuming another study will be paid for to discover that NHL players are also at high risk of this "brain disease".  

CTE is not something that can be diagnosed until after doing an autopsy on a person's brain.  However TBI, or Traumatic Brain Injury, is both real and something that can be diagnosed while a person is still alive.  The symptoms are largely the same: mood swings, memory loss, depression, etc. are all symptoms of this injury.  However, I can speak from personal experience that the majority of 'mainstream' doctors like neurologists do not recognize this injury as something real.  If they can't see it with their own eyes, measure it exactly, then they believe it can't be real.  In my case, my neurologist is happy to prescribe medicine while actually believing I am nothing more than an hysterical female making things up.  After all, my concussion was years ago and I never lost consciousness.  I couldn't have a problem.

I have TBI.  It is not something I would wish on my worst enemy. And at this stage in my life, I probably only have a moderate case of TBI.  I am able to go to and graduate from grad school,  hold down a job, have a full conversation with people and even though I can remember very few things from  my life before the accident, I can now remember things from after the accident.  Why?  Because I have a doctor who thinks outside the box.  "Real" doctors like my neurologist were unable or unwilling to recognize a problem that my family, friends, and myself all saw. My chiropractor however, looks at the whole picture, reads everything he can get his hands on, and can quote in detail the heartbreaking number of our soldiers coming back with TBI who are not getting the help they need.  He has joined the small rank of doctors who have discovered a way to help sufferers of TBI.  HyperBaric Oxygen Therapy.  It helps.  Probably nothing can completely repair the damage done to a concussed brain, especially one who receives as many concussions as a professional athlete or soldier. The brain is a delicate and mysterious organ we will probably never really fully understand. But if 'mainstream' doctors will get their heads out of their tiny boxes and look at a larger picture, the whole body, and now the common sense studies backing up the idea that brain injuries cause severe physical and psychological problems in individuals, maybe something more can be done.  CTE may be an "invisible disease" only found after death, but that doesn't mean that a sufferer can't be helped while they are alive.  Maybe never completely, but any quality of life improvement is something to be thankful for.  Whether it will help enough to reduce the number of suicides in the injury sufferers (can you tell I don't like the term 'disease' applied to this?) is of course, impossible to tell.  But any help at all is better than they had before, and in some cases it might be enough.

If you get nothing else out of this semi-rant, remember this: your doctor doesn't necessarily have all the answers.  Even though he wants you to believe he does.  Listen to your body and what it tells you over what a test says.  You are more likely to know yourself.  

4 comments:

  1. Thanks for the shoutout! I actually thought of you the other day when the local news had an NCAA football player suing for being unable to finish school or hold down a job from his head injuries. I'm more inclined to be sympathetic to college players who aren't compensated. The NFL I feel a bit more strongly that they were being offset from head injury with large financial contracts. But it's also why I don't work in a coal mine. lol

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  2. I go to a female doctor, and I have told some of my male doctors that they are wrong...One always needs to stick up for them selves. The hardest time to do so is when you are most weak...that is what sucks about being sick/weak and at the beck-and-call of a nurse or doctor...it is a catch-22. And yes even stupid people get degrees (at least Ph.D in Chemistry)

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  3. Great post, Anne... incorporating your own personal experience here makes this very powerful. Informative, and it sounds like your chiropractor has been a real help to you.

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